Sufferers Need a Helping Hand!

Porphyria causes tremendous problems, not only for the person with Porphyria, but for their families as well.  When a two income family is reduced to one income, the financial burden can be enormous and can create extreme stress.  This stress is not good for the person with Porphyria, nor is is good for their families or friends.  We need to devise new methods of providing support for people with Porphyria.

One such resource is an email list on Yahoo Groups.  It provides education, support and scientific information about Porphyria.  If you have Porphyria or are the friend or family member of a person with Porphyria, we encourage you to join our email list.  To join the list, just fill in the following form: